Recommended resources
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Book recommendation: With the End in MindFor those who are keen to read more about palliative care. Dr Kathryn Mannix (retired consultant in palliative care from North East) has written eloquently on the subject. Really accessible for reading for both professionals and parents/caregivers who feel comfortable with reading case studies about dying patients.  Time: 11hrs 45 mins (approx) | ||
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Communication - Book recommendation: ListenFor those who are keen to read more about palliative care. Dr Kathryn Mannix (retired consultant in palliative care from North East) has written eloquently in follow up to her first book (With the End in Mind). This book is all about how we communicate around those 'tender' conversations.
Time: 10hrs 40 mins (approx) | ||
Complex care - PodcastComplex is a 3 part podcast available via BBC Sounds. Seven year-old Nora has a rare genetic disorder and complex care needs. This three-part series guides us through the concentric circles of Nora's life and round-the-clock care.
https://www.bbc.co.uk/sounds/brand/m00201xd Time: 42 minutes x 3 episodes. | ||
CPD - Brain SPACE Teaching SeriesHosted by Shooting Star Children's Hospices, why not check in to this free education series on the third Thursday of the Month 1230-1330 via Teams.   To book session visit: www.sschospices.litmoseu.com/onlinecourses/ or scan QR code  You can even download the pdf and stick it up in your staffroom! | ||
CPD - Spotlight evening education series: PPC & other specialtiesJoin us for our third regional evening webinar series, exploring shared patients, challenges and solutions, looking at Paediatric Palliative Care and other specialities in turn. Sessions are a great way to check in for CPD, a rich bidirectional learning environment. Wednesdays every 6-8 weeks at 1930-2045 via Teams Hosted by Helen & Douglas House Children's Hospice and the Compassionate Care Collaboration Group in Oxford, sign up for one or more event here: Please also feel free to download the attached poster and share within your own networks! | ||
Cultural experiences of death & dyingProduced for HospiceUK Dying Matters Awareness Week 2025, this video explores the cultural experiences of three hospice volunteers:
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Death & dying: TedTalk what happens when we die?Have we lost the practical wisdom of what happens as people die? With lessons from a career witnessing thousands of people's final breaths, palliative care expert Kathryn Mannix urges us to demystify the experience of death, sharing how a better understanding of what actually happens can reduce fear in the final days, for you and your loved ones.
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Disagreements in the care of critically ill childrenCommissioned in Dec 2022 after some high-profile cases, this report looks at available literature, did a  call for evidence, interviews with parents and surveys with follow-up workshops with healthcare professionals to examine the ethical challenges in treating critically ill children, how disagreements develop, the impact of disagreements (on the child, families and healthcare professionals) and ways of resolving disagreements. Evidence is presented thematically, with case studies highlighting good practice and recommendations for further research, guidance development, education and clinical practice adaptations. In the appendix there are some useful infographics too:  Read-time for the full report is quite long (allow at least 20-30 minutes), but could be a useful springboard for discussion or help build evidence for organisational change. Report freely available on their website here or see pdf below. | ||
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Enhancing Practice in Palliative Care for Children, Young People and Families
This 20 credit module, Enhancing Practice in Palliative Care for Children, Young People and Families, taken at either level 6 or level 7, has been designed in collaboration with practice partners in children's palliative care. Our aim is to offer a course to professionals working with children and families with palliative care needs in any setting, that:
Course sessions will be offered by experts in the field from a range of practice and academic roles. | ||
