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A

ACP - Advance Care Planning

This video was produced for an education session on Advance Care Planning in Paediatrics for healthcare professionals. Through conversation, a parent and a healthcare professional explore what Advance Care Plans are, and what the benefits and challenges of having this discussion are:

   

For more, why not check out our Advance Care Planning in Children PPCEducate module


Agitation - Management of Agitation in PPC APPM Guideline

Evidence-based guideline for the management of agitation in children and young people in the palliative care setting. Includes definitions of agitation and terminal agitation, general principles, assessment and considerations and management options. 

Summarised in this handy algorithm, but do see full document for details. 

Available from: APPM.org.uk or attached pdf

Publication date: Jan 2023; review date Jan 2026

Read time: around 8 minutes



B

Book recommendation: With the End in Mind

For those who are keen to read more about palliative care. Dr Kathryn Mannix (retired consultant in palliative care from North East) has written eloquently on the subject. 
Really accessible for reading for both professionals and parents/caregivers who feel comfortable with reading case studies about dying patients. 

 

Time: 11hrs 45 mins (approx)

C

Child Death reviews (CDOP) - key recommendations

The NCMD (National Child Mortality Database) reported on themes of deaths of those with life-limiting diagnoses in 2025. Key recommendations/areas for improvement were:

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A link for the full report is found here


Communication - Book recommendation: Listen

For those who are keen to read more about palliative care. Dr Kathryn Mannix (retired consultant in palliative care from North East) has written eloquently in follow up to her first book (With the End in Mind). This book is all about how we communicate around those 'tender' conversations. 
Really accessible reading for professionals.


Time: 10hrs 40 mins (approx)


Complex care - Podcast

Complex is a 3 part podcast available via BBC Sounds. Seven year-old Nora has a rare genetic disorder and complex care needs. This three-part series guides us through the concentric circles of Nora's life and round-the-clock care.


https://www.bbc.co.uk/sounds/brand/m00201xd

Time: 42 minutes x 3 episodes.


CPD - Brain SPACE Teaching Series

Hosted by Shooting Star Children's Hospices, why not check in to this free education series on the third Thursday of the Month 1230-1330 via Teams. 



To book session visit: www.sschospices.litmoseu.com/onlinecourses/ or scan QR code



You can even download the pdf and stick it up in your staffroom!


CPD - Spotlight evening education series: PPC & other specialties

Join us for our third regional evening webinar series, exploring shared patients, challenges and solutions, looking at Paediatric Palliative Care and other specialities in turn. Sessions are a great way to check in for CPD, a rich bidirectional learning environment. 

Wednesdays every 6-8 weeks at 1930-2045 via Teams

Hosted by Helen & Douglas House Children's Hospice and the Compassionate Care Collaboration Group in Oxford, sign up for one or more event here:

Sign up here

 


Please also feel free to download the attached poster and share within your own networks!


Cultural conflict - Book recommendation

Book title: The Spirit Catches You and you Fall Down
Author: Anne Fadiman
 
 
Summary:
 
"If you can’t see that your own culture has its own set of interests, emotions, and biases, how can you expect to deal successfully with someone else’s culture?"
In this book Anne Fadiman tells the true tale of Lia Lee, a Hmong child diagnosed with epilepsy treated at a small hospital in the USA. Fadiman explores the complexity arising when the care of a child is caught between a conflict of cultures. 
 
Reading time: 8 hours
 
 

Cultural experiences of death & dying

Produced for HospiceUK Dying Matters Awareness Week 2025, this video explores the cultural experiences of three hospice volunteers:

   



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