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T

Textbook: Children's Palliative Nursing Care

This text (published 2025) is aimed at nurses delivering palliative care to children. It has been written by nurses working across the globe, so although it has a significant UK representation, there are examples of how PPC can be facilitated in other countries including those where services are less developed. 

Themes include delivery of care, training and education, self care for nurses, symptom management, end-of-life care and bereavement, leadership, evaluation of care.

The text includes the CPCET UK and Ireland Education Standard Framework (2020) which has been mapped to the different chapters.

I would recommend this text to nurses working in PPC and also other members of the MDT.


Tone - ACT course: Approaching Children's Tone


This is CPD-accredited 2-day course supported by the British Paediatric Neurology Association aiming to improve recognition of initial symptoms of abnormal (high or low) tone and speed-up referral to appropriate specialists. In turn, the course aims to reduce the time to diagnosis and quicken provision of suitable treatment and/or therapy and improve the experience of the child/young person and family. 

The comprehensive programme includes:

  • Anatomy
  • Terminology & language
  • Investigations
  • Assessment tool
  • When to refer
  • Physical interventions
  • Medical & surgical interventions
  • Management of neuromuscular disorder

Aimed at consultants & trainee paediatricians in Paediatrics, Neurodisability and Community Paediatrics, and therapists. 

Book via website (and see other available courses) here



Transition Tool

Best Practice Guideline and tool for supporting young people's care with complex needs into adulthood. 

Transition Guideline


V

Verification of Expected Child Death


An independent learning course on PPCEducate to increase knowledge and competency of governance, legalities and responsibilities and support practical application of verification of expected death in babies, children and young people.



Topic areas
:
  • Why do we need to verify? Who can verify, and how?
  • Talking about death & verification - some communication strategies
  • Spiritual and cultural considerations
  • Taking care of yourself
Aimed at: Nurses and Paramedics, but also may be suitable for junior doctors. 

Time: Allow around 1.5 hrs to complete

How to access
Go to ppceducate.co.uk, Login and access the course!
If you work in the South of England you can access for free - email ppceducate@gmail.com
Otherwise, there is a PayPal link for instant access


W

When a child dies - a guide for parents and carers

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This guide has been put together by a bereaved parents, support organisations and professionals. It is for parents and carers of a child under 18 to help them understand some of the things that will happen and support that is available.

Published by NCMD (National Child Mortality Database) Programme. It gives a gentle summary of:

  • What happens when a child dies
  • Key worker role
  • Further investigations that might be needed
  • The Child Death Review process
  • Supportive things to consider at this stage (death registration, planning a funeral, financial and social support)

See here to download, or attached pdf



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