Recommended resources
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Tone - ACT course: Approaching Children's Tone
This is CPD-accredited 2-day course supported by the British Paediatric Neurology Association aiming to improve recognition of initial symptoms of abnormal (high or low) tone and speed-up referral to appropriate specialists. In turn, the course aims to reduce the time to diagnosis and quicken provision of suitable treatment and/or therapy and improve the experience of the child/young person and family. The comprehensive programme includes:
Aimed at consultants & trainee paediatricians in Paediatrics, Neurodisability and Community Paediatrics, and therapists. Book via website (and see other available courses) here | ||
Transition ToolBest Practice Guideline and tool for supporting young people's care with complex needs into adulthood. | ||
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Verification of Expected Child Death![]() An independent learning course on PPCEducate to increase knowledge and competency of governance, legalities and responsibilities and support practical application of verification of expected death in babies, children and young people. Topic areas:
Time: Allow around 1.5 hrs to complete How to access: Go to ppceducate.co.uk, Login and access the course! If you work in the South of England you can access for free - email ppceducate@gmail.com Otherwise, there is a PayPal link for instant access | ||
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When a child dies - a guide for parents and carers
This guide has been put together by a bereaved parents, support organisations and professionals. It is for parents and carers of a child under 18 to help them understand some of the things that will happen and support that is available. Published by NCMD (National Child Mortality Database) Programme. It gives a gentle summary of:
See here to download, or attached pdf | ||
This text (published 2025) is aimed at nurses delivering palliative care to children. It has been written by nurses working across the globe, so although it has a significant UK representation, there are examples of how PPC can be facilitated in other countries including those where services are less developed. 


