Recommended resources

This video was produced for an education session on Advance Care Planning in Paediatrics for healthcare professionals. Through conversation, a parent and a healthcare professional explore what Advance Care Plans are, and what the benefits and challenges of having this discussion are:

For more, why not check out our Advance Care Planning in Children PPCEducate module? 

Evidence-based guideline for the management of agitation in children and young people in the palliative care setting. Includes definitions of agitation and terminal agitation, general principles, assessment and considerations and management options. 

Summarised in this handy algorithm, but do see full document for details. 

Available from: APPM.org.uk or attached pdf

Publication date: Jan 2023; review date Jan 2026

Read time: around 8 minutes

Download pdf below

The NCMD (National Child Mortality Database) reported on themes of deaths of those with life-limiting diagnoses in 2025. Key recommendations/areas for improvement were:

A link for the full report is found here

Together for Short Lives and HEARD combined to produce this short introductory video, introducing the joy and magic of children's palliative care:

This video can be used for families, or as a teaching aide. 

For those who are keen to read more about palliative care. Dr Kathryn Mannix (retired consultant in palliative care from North East) has written eloquently in follow up to her first book (With the End in Mind). This book is all about how we communicate around those 'tender' conversations. 
Really accessible reading for professionals.

Time: 10hrs 40 mins (approx)

HEARD, experts in media and narrative change, help us understand how to talk about children's palliative care. Key messages include framing well by leading with correct information & telling through stories, and how palliative care allows children to be children.

(Image taken from BMJ - see here for full article)

Download the full HEARD CPC communications toolkit & framing guide from HEARD website, or pdf attached

Complex is a 3 part podcast available via BBC Sounds. Seven year-old Nora has a rare genetic disorder and complex care needs. This three-part series guides us through the concentric circles of Nora's life and round-the-clock care.

https://www.bbc.co.uk/sounds/brand/m00201xd

Time: 42 minutes x 3 episodes.

Join us for our third regional evening webinar series, exploring shared patients, challenges and solutions, looking at Paediatric Palliative Care and other specialities in turn. Sessions are a great way to check in for CPD, a rich bidirectional learning environment. 

Wednesdays every 6-8 weeks at 1930-2045 via Teams

Hosted by Helen & Douglas House Children's Hospice and the Compassionate Care Collaboration Group in Oxford, sign up for one or more event here:

Sign up here

Please also feel free to download the attached poster and share within your own networks!