Recommended resources
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Child Death reviews (CDOP) - key recommendationsThe NCMD (National Child Mortality Database) reported on themes of deaths of those with life-limiting diagnoses in 2025. Key recommendations/areas for improvement were:
A link for the full report is found here | ||
Communication - Book recommendation: ListenFor those who are keen to read more about palliative care. Dr Kathryn Mannix (retired consultant in palliative care from North East) has written eloquently in follow up to her first book (With the End in Mind). This book is all about how we communicate around those 'tender' conversations.
Time: 10hrs 40 mins (approx) | ||
Communication: Talking about or Introducing Children's Palliative Care - HEARD toolkitHEARD, experts in media and narrative change, help us understand how to talk about children's palliative care. Key messages include framing well by leading with correct information & telling through stories, and how palliative care allows children to be children. (Image taken from BMJ - see here for full article) Download the full HEARD CPC communications toolkit & framing guide from HEARD website, or pdf attached | ||
Complex care - PodcastComplex is a 3 part podcast available via BBC Sounds. Seven year-old Nora has a rare genetic disorder and complex care needs. This three-part series guides us through the concentric circles of Nora's life and round-the-clock care.
https://www.bbc.co.uk/sounds/brand/m00201xd Time: 42 minutes x 3 episodes. | ||
CPD - Spotlight evening education series: PPC & other specialtiesJoin us for our third regional evening webinar series, exploring shared patients, challenges and solutions, looking at Paediatric Palliative Care and other specialities in turn. Sessions are a great way to check in for CPD, a rich bidirectional learning environment. Wednesdays every 6-8 weeks at 1930-2045 via Teams Hosted by Helen & Douglas House Children's Hospice and the Compassionate Care Collaboration Group in Oxford, sign up for one or more event here: Please also feel free to download the attached poster and share within your own networks! | ||
Cultural conflict - Book recommendationBook title: The Spirit Catches You and you Fall Down
Author: Anne Fadiman
Link to purchase: https://www.amazon.co.uk/Spirit-Catches-You-Fall-Down/dp/0374533407
Summary:
"If you can’t see that your own culture has its own set of interests, emotions, and biases, how can you expect to deal successfully with someone else’s culture?"
In this book Anne Fadiman tells the true tale of Lia Lee, a Hmong child diagnosed with epilepsy treated at a small hospital in the USA. Fadiman explores the complexity arising when the care of a child is caught between a conflict of cultures.
Reading time: 8 hours
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Cultural experiences of death & dyingProduced for HospiceUK Dying Matters Awareness Week 2025, this video explores the cultural experiences of three hospice volunteers:
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