Recommended resources

Developed in 2023 from all evidence available: this guide to seizure management in paediatric palliative care has some handy summary principles and management strategies.

Reading time: apporx 7 minutes

Available from the APPM website here

The Southeast PPI group led a webinar entitled Siblings: I'm fine in October 2024.

In this recording, you will see examples of how siblings of children with palliative diagnoses may show their feelings and emotions through creative ways, and hear parents and healthcare professionals how to best support this group. 

Watch time: 80 minutes

(PS - we are all wearing hats as the event was held as part of ICPCN HATs on for Children's Palliative Care!)

Together for Short Lives - Caring for a child at end of life

This useful document provides a practical toolkit for all practitioners who are involved in end of life care for a child and their family. It sets key standards and goals that support best practice. The guide is helpfully divided into sections of, care before death, care at the time of death and care after death. In addition, it offers guidance for bereavement support and staff support. There are useful links to other resources.

The document is underpinned by national guidance including NICE (2016) and the quality Standards alongside the requirements set out by external regulations. It is a useful guide to help develop knowledge and skills for professionals.