Recommended resources

This text (published 2025) is aimed at nurses delivering palliative care to children. It has been written by nurses working across the globe, so although it has a significant UK representation, there are examples of how PPC can be facilitated in other countries including those where services are less developed. 

Themes include delivery of care, training and education, self care for nurses, symptom management, end-of-life care and bereavement, leadership, evaluation of care.

The text includes the CPCET UK and Ireland Education Standard Framework (2020) which has been mapped to the different chapters.

I would recommend this text to nurses working in PPC and also other members of the MDT.

This is CPD-accredited 2-day course supported by the British Paediatric Neurology Association aiming to improve recognition of initial symptoms of abnormal (high or low) tone and speed-up referral to appropriate specialists. In turn, the course aims to reduce the time to diagnosis and quicken provision of suitable treatment and/or therapy and improve the experience of the child/young person and family. 

The comprehensive programme includes:

• Anatomy
• Terminology & language
• Investigations
• Assessment tool
• When to refer
• Physical interventions
• Medical & surgical interventions
• Management of neuromuscular disorder

Aimed at consultants & trainee paediatricians in Paediatrics, Neurodisability and Community Paediatrics, and therapists. 

Book via website (and see other available courses) here

Best Practice Guideline and tool for supporting young people's care with complex needs into adulthood.